Busting out!

Good evening folks,

website-under-construction1c

I have been making changes, HUGE changes, to pull myself out of the abyss.  It has taken a lot of work, practice, focus and dedication and I am pleased to announce that it is working, beautifully and effectively.  I am reclaiming my life.  In the recent weeks I have been to a local health food store (multiple times), Earth Fare, Office Depot, Books-A-Million, AND T-Mobile!  I have used a brand new phone, my new computer….  I’ve eaten in a restaurant, been around others eating, been around MANY different fumes and scents and I am doing so great!

I’m sorry for not posting, anything….but I am really busy living now.  I hope you all can understand.  I will check back here once a month, to update on what we’re doing, where we’re going and what we’re eating.  Life is not just changing, life is actually happening now.  I’m living now.   It is SO exciting.  Thanks for all of the support you guys have given us the past few years.  It’s been a struggle but that struggle is almost over for us.  We have found what works and we are throwing ourselves in 100%.

If you are interested in what I’m doing, you can check out DNRSystem.  Skeptical about it working?  Yeah, I was too….for over a year and a half and refused to order it or try it.  BUT I gotta tell ya, it works and I am living proof.  I don’t get paid to sell it….but I am singing it’s praises.  Now, if you will excuse me.  I’m about to go eat some apples, grapes and cheese and then gorge on an omelet and brownies and play with my brand new cell phone (the other new phone didn’t work so we got a new one).  Bye-bye issues….I won’t miss you at all.

Medical Alert Jewelry

Hi all,

Just received an email from Fiddledee IDs.  They are currently having a back to school sale on Medical Alert Jewelry.  Wanted to share the coupon with you all.

Remember to check the expiration date on your Epi-Pens.  Remember to not only teach your child but other adults around them the proper level of avoidance for their sensitivity, because some people just don’t get it and accidents happen.  This story broke my heart this morning.  I’m praying for this child’s family.

A Bump in the Road…

The bump was expected and anticipated, though I tried not to stress about the inevitable.  The bump was corn, hidden corn.  The new doctor doesn’t get corn, most doctors don’t understand corn, most of my family and friends don’t understand corn.  They do not understand how it is used in the processing and manufacturing of almost everything.  They do not understand how the aforementioned usage of corn contaminates “safe products for sensitive people.”  They do not understand how we can react to the tiny traces remaining in/on products.

The new doctor wants to pull the HCL that I’ve been using to help with my digestion.  She wants me to take a digestive enzyme.  I know you all know the pitfalls of digestive enzymes, but the new doctor has no idea.  I turned down many of her recommendations because of the “other ingredients” listed for the “safe for sensitive people” products.

I decided to try the digestive enzymes (even though it is industry standard to use maltodextrin, i.e. corn, during the drying process) because they were cheap, there were no other filler ingredients and I knew, though we would react to it, that the amount of corn was small.  I wanted the doctor to be able to see our sensitivity level, so that I would never have to prove it to her again; get the disbelief out-of-the-way with the least amount of pain for Yipi and for me.

And it is disbelief.  Doctors aren’t taught much about corn allergy/intolerance and the fact that corn allergy/intolerance doesn’t seem to follow the same pattern as other allergens just makes it more unbelievable.  I honestly think doctors are told that corn can’t be an allergen...but that could be paranoia.  I sincerely hope it is only paranoia on my part.  See this article written by the Allergy Associates of Lacrosse titled “Allergic to Corn – Living Without.”

Although corn products are widely consumed, there is a general lack of understanding when it comes to corn’s role as a
food allergy or sensitivity. One reason is that corn is not one of the so-called Big Eight allergens (peanuts, tree nuts,
wheat, milk, egg, shellfish, fish, soy) that together cause 90 percent of America’s food allergy reactions. It doesn’t fall
under the Food Allergen Labeling and Consumer Protection Act of 2004, which means that manufacturers aren’t
required to list it as an ingredient by its common name, highlight it on product labels or name it as a possible source of
cross-contamination in a product.


“I sympathize with people who have corn allergy because corn is very hard to avoid,” says Mary S. Morris, MD, of Allergy
Associates of La Crosse in La Crosse, Wisconsin. “A lot of times, people don’t connect their symptoms to the corn
sweetener in their ice cream.”

Adding to the confusion is the fact that symptoms of corn allergy can differ from those of more common food allergies.
While corn can prompt anaphylaxis, including breathing difficulty, hives, swelling and even death in severely cornallergic
patients, more often it causes headaches, fatigue and irritability.

“I’m surprised at how frequently corn will trigger a bad headache, even in children,” Morris says.

Another factor contributing to questions about corn allergy is that people can have varied reactions to different forms of
corn, Morris explains. For example, some people have more of a problem with corn sweetener than they do with corn on
the cob or cornstarch. And corn pollen or corn dust that’s inhaled during harvest can trigger a reaction in some people
who often can consume corn without a problem, she says.

All this makes corn allergy difficult to diagnose, Morris notes. Corn might show up in a typical skin or blood test that
checks for IgE (the allergic antibody) levels—but not always. IgE allergy tests didn’t detect Clare Donlan’s corn allergy.

“Sometimes corn is IgE-mediated but sometimes the only way to figure it out is to do a corn challenge test under
medical supervision in a doctor’s office,” Morris says, adding that she conducts oral challenges when she can’t tell for
sure if a suspected food is causing a reaction.

Morris’ practice routinely screens for corn allergy through a blood test and, while corn is a less common allergen than
the Big Eight, it is common enough that she says she sees patients with corn allergy every week.

Not all doctors would consider corn allergy as potential cause of a patient’s headaches or behavior issues. In fact, some
question whether the grain is even a true allergen. For example, Morris recalls informing a surgeon that her patient,
hospitalized under the surgeon’s care, had a corn allergy. The surgeon said the allergy wasn’t possible and ignored
Morris’ request not to administer dextrose (usually corn-based) to the patient. It took the patient’s allergic reaction to
corn during surgery to convince the physician that the allergy did exist.

“Because it’s not on the top-eight radar, it’s not the first place people go to look for the root cause of their symptoms.
Even though corn is the source of many severe problems for people, it is many times overlooked,” she says.


Read more:  Allergic to Corn – Living Without

I hope you followed the link, read the article and saved it to your computer.

I opened one capsule into a container.  We then proceeded to introduce the digestive enzyme onto our skin for a few days and then moved to ingestion after no noticeable reaction on the skin.  Within a few days of ingestion, the reactions became apparent.  We consumed about 1/1000th of the initial capsule we opened.  ….ok….you got me…I don’t know exactly how much of the capsule we consumed but it was a microscopic amount.  I emailed the company and simply asked them to check with the manufacturer to see if any maltodextrin was used during the drying process of the digestive enzyme.  Later that day (May 14th) I received the confirmation email that maltodextrin is used, but only a small amount.  That small amount is enough for Yipi and me to react.

Since beginning the GAPS diet, I have had less brain-fogged/limited cognitive ability days.  I am able to think clearer, I have more energy (my house is clean!!!!) and I am able to actually put my thoughts into coherent sentences.  I am able to remember how I felt before a reaction and to log that state of being as well as the shift that occurs when I’m reacting and the aftermath.  I’ve also noticed, and I’ve mentioned this before, that our reactions are not as severe and do not last as long since beginning the GAPS diet.  Thank you, GAPS.

With that being said, I’m going to copy and paste my notes from my food/reaction/GAPS journal for when we introduced the digestive enzyme, during the administration of digestive enzyme, and the aftermath.  We stopped the enzymes two days ago and the swelling and severe itching/hives/awful rash are already subsiding.

Notes from Journal:

5/7/2013  –  Erica started 3 RNAs and Digestive Enzyme on skin
5/8/2013  –  Yipi bad chemical reaction, behavior just awful all day, she couldn’t control herself.  Difficulty communicating.  The reaction was from the new unfinished poplar bed, she was in too close of proximity to it in a sealed room.  Not a good combination.  Gave her three baths today.  Will do three baths tomorrow.  (Bed has been airing out for over 6 months)
5/9/2013 – Erica began consuming one drop of RNAs and a tiny amount (less than 7mg) of digestive enzyme.
5/10/2013  –  Put one drop of RNAs on Yipi’s legs in the morning.  Erica took her morning dose of RNAs and Digestive Enzyme.  Erica noticed a little wax and some pressure in her ears after the dose.
5/11/2013  –  Last night I noticed the RNAs tasted like soap, I also increased my ingested dosage to two drops per RNA.  This morning they still taste like soap.  We began given the RNAs to Yipi through ingestion.  Digestive Enzyme is still being put on her skin for now but she is getting it from my milk.  Erica noticed that her left eye lid is swollen.  Yipi’s rash seems to be healing. (pictures in file)
5/12/2013 – Noticed Yipi twisting her hair on her finger during her nap.  Also noticed her itching at her scalp a few days ago.  Rash getting worse.
5/13/2013 – I’m still swollen and Yipi started really ripping at her hair today.  I had to cut it off again.  Her scalp is red with hives, her abdomen, bikini are and booty are red.  I think she’s reacting to the digestive enzyme in my milk.
5/14/2013
  • Emailed manufacturer last night to see if digestive enzymes were sprayed onto maltodextrin to dry (cross contamination, maltodextrin is derived from corn).  From my research, in the past three years, it is industry standard to spray enzymes onto maltodextrin to dry.  Yes they do use a little maltodextrin (5/14 confirmed)
  • I am swollen, from 136.8 (swelling was subsiding from previously exposure) to 143lb in about 4 days
  • My eyelids are swollen and my eyelashes feel like daggers, pulling them out, trying to stop myself
  • Orange wax in ears
  • Lower back pain and hip pain (from swelling)
  • My insomnia has returned.  It is almost impossible to get to sleep at night and get back to sleep if I awake.
  • Yipi’s stomach is distended and swollen, her rash has brown whelps in it and is raised, the rash on her stomach is back, she is digging into her scalp and ripping her hair out, she is also having difficulty getting to sleep at night, and she is soaking through her diapers multiple times at night (sign of reaction for her)
  • We are reacting to something, it is either the RNAs or the digestive enzymes.  With our history of reactions and how enzymes are produced, I am leaning towards the digestive enzymes due to cross contamination at drying time during the manufacturing process (confirmed)
  • We pulled the digestive enzymes last night (5/13/2013).  We will see is the swelling and other symptoms subside.
  • I’ve also noticed another swollen, painful, bug bite looking thing under my arm.  I’m going to go with ingrown hairs at this point.  Definitely corn exposure.
  • Skin peeled off in two sheets on the middle finger on my left hand.  Very painful.
  • One good thing is Yipi pooped a teeny tiny amount today on her own.  About 1 tsp.  Black tar with a lot of mucous.
5/15/2013  –  Since pulling the digestive enzymes two days ago, Yipi’s itching has lessened and her rash is starting to heal and peel (she was getting a double dose, topical and from my milk).  My swelling is down to 139lbs and my lower back/hip pain has subsided.  Yipi pooped again a little.  About 1/4tsp of black tar.  I am having some pretty severe lip peeling today.

From Kelly Dorfman, Clinical Nutritionist on Corn Intolerance

Yesterday, September 18th, Kelly Dorfman,a Clinical Nutritionist, posted this article on Huffington Post.  I wanted to share it with you all here.  The article is titled “Corn:  New Worries about and Old Favorite” and raises many of the points that I’ve pondered over the past 2 1/2 years.  What are your thoughts?

I am starting to worry about corn. It started a few years ago when I noticed allergic babies in my practice were beginning to react to the infant formulas designed for them. These specialty products are made from basic protein building blocks (amino acids) rather than pre-digested milk protein. Minimum digestive function is required to tolerate them. In addition, they lack the complex antigens that tend to set off immune reactions, so they were a dependable way to save the day (and baby).

Despite being completely unnatural, these formulas are a critically needed feeding alternative for sensitive babies. But several years ago, I started to notice a problem. At first, it was a case here and there, but soon a growing number of infants appeared who could not tolerate any commercial formula. One frantic mother sat in my office with a red, mottled baby who screeched through the entire hour appointment. When I asked how often she was distressed at this level, the exhausted mom replied, “23 hours a day.” Several specialists and numerous formulas yielded the same distressed response.

I suspected corn.

The safety of GM foods is still being debated elsewhere, though not in as much gory detail as it deserves. Clearly, a policy of playing with our food now and deciding if what we are doing is safe later is risky. Our collective history is littered with the dead bodies of those who paid the price for scientific arrogance or someone else’s economic self-interest. Consequently, accepting assurances that ingesting food with inserted bacterial DNA is no different than eating the unadulterated stuff, from the very people who stand to gain from selling said food, could be hazardous to your health. When people started reporting symptoms from eating adulterated corn, I listened and blamed the GM process.

As is often the case, one does not know what one does not know. A study published earlier this year about bee colony collapse suggests a new wrinkle in corn land. Since 2006, honeybees have been dying at an alarming rate. Farmers need bees for crop pollination and if they keep dying at the current rate, there could be serious food production problems. Dr. Chenshen Lu from the Harvard School of Public Health has studied the colony collapse phenomenon. His research concerns the high-fructose corn syrup used to sustain bees over the winter. Specifically, his test target is imidacloprid, one of the world’s most popular pesticides.

In my practice, the health effects are often subtle, making it extremely difficult to ascertain whether the problem is corn, pollutants, food adulterations, fabric softener, sunscreen additives or a high pollen count. … The problem is the loss of navigational control regarding food safety. Somehow we have completely lost our way.

Read more here.

The Truth About Flouride from Dr. Doris Rapp

You can read the entire blog post here.  Below is an excerpt from her blog post.

Fluoride-pushing doctors and dentists who try to contaminate your water supply with fluoride are promoting their deadly agenda with a clever lie… a lie you will see obediently repeated in every fluoride push. Here’s how it sounds:

Fluoride is a naturally occurring mineral in the water. Our city’s water is unfortunate enough to have a low level, so we are simply adjusting the fluoride in the water to its optimum levels to improve public health.

This lie is repeated almost verbatim, across every city that seeks to poison its citizens with fluoride. Why is it a lie? Here are the five false deceptions found embedded in the statement:

Deception #1) The fluoride ADDED to the water is not “naturally occurring fluoride.” It’s a chemical byproduct often purchased from chemical plants in China (see below).

Deception #2) The false idea that ingesting fluoride is somehow good for your teeth. At best, fluoride is a topical treatment which should be swished around your mouth and then spat out. And that’s only if it’s truly natural (mineral) fluoride, not the fluosilicic acid toxins being pushed as fluoride.

Deception #3) What cities call “fluoride” is actually a toxic cocktail of over 100 deadly industrial chemicals and heavy metals, many of which are purchased in bulk from China, where industrial processing plants are trying to get rid of their excess toxic waste by labeling it “sodium fluoride.”

Deception #4) There is no such thing as a “low” level of fluoride or an “optimum” level of fluoride in drinking water. Pure drinking water should contain NO fluoride whatsoever.

Deception #5) Fluoride is “safe” for human consumption. Oh really? Then why is sodium fluoride labeled by its industrial manufacturers with stern safety warnings about causing severe harm to humans?

Chinese fluoride manufacturers openly admit to the toxicity of the chemical

Read more here.

Might as well eat it…

…that’s what Suppressed Inner Erica was telling me after my recent bought with allergens.

If you’re going to react anyway…might as well eat it.

Suppressed Inner Erica is a bit of a loon.  You can’t listen to that chick, she will get you into a world of hurt.  Thankfully Sane Logical Erica stepped forward and made that crazy chick stand down.  We are attempting to gather safe versions of our food allergens (safe meaning uncontaminated by corn derivatives) for our food allergy testing at the Environmental Health Center in Texas.  This weeks gathering included cantaloupe, tomatoes, and peppers.  Cantaloupe has hated me since infancy, peppers and I have had a love hate relationship since junior high school and tomatoes loved me until two years ago.  The hubby and I were not prepared for the reactions to the fumes of the food, had we known, we would have taken the necessary precautions to transport the food home with limited exposure and processed it in the garage, bypassing bringing it into the house.  We weren’t prepared and the ignorance and ill preparation has made for a very painful 3 1/2 days.

I realized something was terribly wrong Sunday morning at 3:30am.  I was still awake, running a fever, and my thoughts and pulse were racing.  I finally lost consciousness, I don’t think it was sleeping, sometime after 4:00am.  When I awoke the next morning, my right foot looked like this:

My shoulders were also swollen, my back was beginning to swell, I had knee pain, my stomach was in distention, the pitting edema had returned, and I had a sinus infection with severe chest cavity pressure and a sore throat.  At this point, Sane Logical Erica held a PowerPoint presentation in my mind for Suppressed Inner Erica.  The presentation addressed this simple point:

If we reacted this negatively by simply inhaling the fumes of the food, what do you think would happen if we ate the food?

Suppressed Inner Erica was speechless…but she still dreamed of eating the cantaloupe.  By day’s end my swelling was worse and so were my other symptoms:

I’m going to share these images with the doctors in Texas.  I have no interest in eating these foods ever again but it would be nice to not react to them.  Airborne corn is impossible to avoid, now it seems I am reacting to more foods by simply inhaling the fumes.  I hope inhaling the fumes will be enough to test for immediate and delayed reactions.  I agree with Sane Logical Erica, I am very apprehensive of ingesting the foods when the reaction to inhaling the fumes is already so overwhelming.

Ten Signs of Food Intolerance from Karen Brimeyer

Posted by Karen Brimeyer at Leaky Gut Cure.  I found this particular post to be very straightforward in regards to the signs and symptoms of food intolerance.  Food intolerances are not considered true food allergies.  Food intolerance are not an IgE mediated immune response and often do not have immediate and/or severe reactions.  The effects of food intolerance, however can cause significant damage to your body.

You can find a link to the blog post here.